Facebook - 3/29/2014 - 3 weeks old

March 29 ·

I haven't sent an update in a while because I didn't think it was interesting to know that I sit around and watch Doctor Who all day on Netflix.

I'm doing really well in my recovery. I would say that my body is 90% recovered from the surgery. My 14 inch incision is still healing and the nerves around it are still repairing which feels weird, somewhere between slightly numb and tingly all at the same time. My energy has greatly improved. I don't feel like taking naps anymore which I have fought the urge to do constantly for the last couple years. I get out and walk a mile three times a day which I'm about to have to increase since it's getting too easy. Overall I have lost 25 pounds, a big part of that was my extra large kidneys. I'm going to try to increase my exercise and keep my weight off. I can tell that my head is more clear than it has been for a while. I have had many cloudy days since my kidneys couldn't clean all the toxins away, I'm anxious to see if I work differently.

At the moment we are still in the quarantine stage of my recovery. In the first 6 weeks after transplant the focus is to fine tune all the anti-rejection and immune system meds. The goal is to use as little anti-rejections meds as possible since they lower my ability to fight off germs and illnesses. Which is why I'm hiding in my house away from kids, work, public places and church. The good news is that they have consistently lowered my main anti-rejection drug since leaving the hospital. This means that I'm matching my new kidney really well and don't need to lower my immune system as much as initially expected. The fewer drugs the better.
I have my next visit with my transplant team on Thursday when I will get my update on how susceptible to germs I am and what the next couple weeks will be like.
I want to thank everyone for the incredible support that has been showered on me and my family over the last few weeks. All of the cards, gifts, incredible food, offers for help, texts, well wishes and most importantly the prayers that I give full credit for my recovery, have been appreciated more than I can express.